World albinism awareness day

About the albinism human beings

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Avni Raj
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The International Albinism Awareness Day

The International Albinism Awareness Day was observed on 13th June 2017 with an aim to end multiple forms of discrimination that is faced by people who suffers from albinism. Albinism results in a lack of pigmentation (melanin) in the hair, skin and eyes. As a result, almost all people with albinism are visually impaired and developing skin cancer. There is no cure for the absence of melanin that is central to albinism. The UN General Assembly on 18 December 2014 adopted a resolution that proclaimed that 13 June will be observed as International Albinism Awareness Day. The first Albinism Day was observed on 13 June 2015.

Causes of albinism:

A defect in one of several genes that produce or distribute melanin  causes albinism. The defect may result in the absence of melanin production, or a reduced amount of melanin production. The defective gene passes down from both parents to the child and leads to albinism.

Albinism is a genetic condition where people are born without the usual pigment (color) in their bodies. Their bodies aren't able to make a normal amount of melanin, the melanin is responsible for eye, skin, and hair colour. So most people with albinism have very pale skin, hair, and eyes."Persons with Albinism are usually as healthy as the rest of the population, with growth and development occurring as normal, but can be classified as disabled because of the associated visual impairments”.

Why do albino occur:

Albinism is a disease in which a person has partial or complete loss of pigmentation (coloring) of the skin, eyes and hair. Genetic mutations that affect the production of a pigment called melanin. There is a cell called the melanocyte that is responsible forgiving skin, hair, and eyes pigmentation.

Types of Albinism:

These disorders are generally divided into two types. Oculocutaneous (pronounced Ock-you-low-kew-TAIN-ee-us) Albinism or OCA and Ocular Albinism.  OCA involves decreased pigment in the eyes, hair, and skin. There are 4 types of OCA that have been described depending on the type of genetic defect.  Ocular albinism involves primarily the eyes, while the skin and hair show normal or near-normal coloration.

Quick Facts:

  • International Albinism Awareness Day aims to stop the persecution and murders of people with Albinism.
  • Around the world, between in 17000 and one in 20000 people are albinos.
  • Most people with albinismhave very pale skin, hair, and eyes.
  • Albinism results in a lack of pigmentation (melanin) in the hair, skin and eyes.
  • There is no cure for the absence of melanin.

Apart from this, the United Nations in its 2030 Sustainable Development Agenda in which it pledges to leave no one behind also includes people with albinism. It also appointed the first Independent Expert on the human rights of people with albinism.

 

 

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